Sevinch and Nastarin’s younger brother Ahmadjon was born seven years ago with Down Syndrome, a condition associated with intellectual disability, cognitive delays and weak muscles. “After the birth of our brother, we didn’t have any information about this diagnosis,” Nastarin, 18, says. “That’s why it was shocking for my parents. It was difficult to get away from depression and anxiety. And from the social side, it was also challenging.”
They both adore their brother, helping him with his homework and drawing, his favourite activity.
On the weekends, they spend as much time with him as possible — going out to museums, shopping malls and cafes. They make their brother smile and laugh; playing chase and taking photos on their mobiles.
It was only natural to do something for Ahmadjon, so they made Down Syndrome the focus of their pitch at Tashkent’s 2018 Technovation Challenge.
Their ‘Sun Child’ app features a questionnaire by American professors that helps determine at what stage of development is a child with Down Syndrome. It also includes a multimedia section with informative videos, and a consultation section where people can find doctors who are knowledgeable about Down Syndrome.